Share this comment
Claire, so sorry to read about your struggles during that period. And to observe the process of how health care staff treated your case is shocking but not unfamiliar. We simply don't have all the answers or enough information to cover long covid issues.
Great article 👏 happy to read about real testimonials that tell real truths.
Claire, so sorry to read about your struggles during that period. And to observe the process of how health care staff treated your case is shocking but not unfamiliar. We simply don't have all the answers or enough information to cover long covid issues.
Great article 👏 happy to read about real testimonials that tell real truths.
No and do you know who was supportive? The chronic illness community - it took me a while to find them but when I did they were so welcoming. I don’t use twitter now as it served its purpose and I left the LC fb groups as there were too many suicides and my heart just broke for them. It’s been a very dividing time but I am grateful for my own resilience and my creative ways of getting through...
Yeah exactly this. We should discuss this sometime offline. There's more support being offered on local community levels benchmarked with same qualities from other pockets of the world. The findings are podcast worthy content and I'm happy to supply a crowd of listeners for a webinar if I can get my sh*t together 🥴
Defo! I’d love that! I burnt myself out reading threads on it all but I do want to be of service to others who are struggling - we’ve learnt a lot. ✨
Back for more coz I can't leave it alone 🥴🙄
So many testimonies now coming to surface of long covid symptoms, meanwhile cases are back up and new vaccines are being rolled out. We need to be discussing back stories and sharing best practices as it seems the health care community is just as burned out as the rest of us. I'm tired of answers that end with no solutions but waiting periods to offer.
Okay, rant over. Back to positive sunny affirmations. 🌞 #omshanti
The CI community is amazing. I have a CFS/ME group as well as being part of a CI Facebook group, and it is so reassuring to have a community on hand. You are not alone Claire x
Ok this is interesting... ill maybe look them up - I’m nervous to step back into those spaces as they made me quite unwell... because I was ever searching for hope and there wasn’t any! I’d like to be of service though so maybe that’s a better fit!
The FB one I’m in is CISFA and although I don’t spend a lot of time there it appears to be wholly positive and supportive. The other is a WhatsApp group of people I met during treatment 💕
I totally understand your nervousness, there are also quite a few groups I’ve had to come out of - the main thing is to look after yourself 💕💕💕
https://m.facebook.com/groups/810071422454039/?ref=share