“Sometimes I've set myself the task of doing 10 minutes a day or one sentence a day. And trying to feel like that is enough.”
Love this! As someone who doesn’t have a diagnosis of CFS but does have very very severe fatigue, I may have to borrow this attitude & goal for writing! And always against perfectionism, against ❤️
Thank you for this! I have Fibro and CFS. I have also been living with mold for the past couple of years and that facet of this interview was like a little lightbulb switch.
I'm also so glad to hear that this offered that spark! I have also found that I'll read and read and then sometimes one particular thing sets off a lightbulb.
Dropping a comment to make sure you're receiving my emails? I saw that it seems like one didn't go through about the reschedule and I'm not sure if you got the second one either? Definitely want to chat so just checking in.
Once you're in the club of chronic illness, a whole underground world of people reveals itself to you. I have been told mould is a high problem on the East Coast of Australia , and is becoming more of a problem with climate change, new building codes that prioritise energy efficiency over air flow, and rushed workmanship overall.
“Sometimes I've set myself the task of doing 10 minutes a day or one sentence a day. And trying to feel like that is enough.”
Love this! As someone who doesn’t have a diagnosis of CFS but does have very very severe fatigue, I may have to borrow this attitude & goal for writing! And always against perfectionism, against ❤️
Amen! This was also one of my favorite quotes from Louise :)
Thank you for this! I have Fibro and CFS. I have also been living with mold for the past couple of years and that facet of this interview was like a little lightbulb switch.
I'm also so glad to hear that this offered that spark! I have also found that I'll read and read and then sometimes one particular thing sets off a lightbulb.
Yes, I find that too. I've learned that you have to keep yourself educated on your own medical issues in order to get the right care.
I'm glad you got something out of it!
Great interview <3
Dropping a comment to make sure you're receiving my emails? I saw that it seems like one didn't go through about the reschedule and I'm not sure if you got the second one either? Definitely want to chat so just checking in.
Very sorry! I did get your last one and responded this morning :). Looking forward to our conversation!
No worries. Just making sure. Looking forward to chatting.
Good interview! I definitely know the struggle with the nervous system. It's a long journey and it's not that simple to explain to someone.
Btw, I think in the article she meant to say "sympathetic" nervous system, not parasympathetic right?
I'm increasingly thinking about my nervous system, in part thanks to this conversation. And thanks for the catch - it is fixed!
I think so! Thanks for picking that up...we both missed it!
A great interview Rae & Louise - do you think there’s something in the water here in Melbourne, maybe?
Such a coincidence that the first two were both ME/CFS folks in Melbourne. Glad you two can connect :)
Once you're in the club of chronic illness, a whole underground world of people reveals itself to you. I have been told mould is a high problem on the East Coast of Australia , and is becoming more of a problem with climate change, new building codes that prioritise energy efficiency over air flow, and rushed workmanship overall.
Absolutely. Did I see you in my local coffee shop today? Your face seems quite familiar...
No, not me. Unfortunately I'm in the phase of my illness where getting out is very challenging!
I won’t ‘like’ that! Sucks when you can’t go out, sucks more when you’re too crashed to even want to ❤️🩹